Yesterday was a rough day for me. Judah did great- I just had a rough day. We were planning on discharge today but he started having some arrhythmia's and needed to go back on his oxygen. At first I was really upset that it was happening and that we wouldn't be going home. Then I calmed down and realized that he is in the best place possible and if he's not ready, he's not ready.
I stayed the night before and slept probably 3 hours total. There were about 50 people in and out of his room, a possible MRI with sedation that I did not want him to go through (it was optional for a research study on his CHD), I had a fever thanks to the mastitis, and emotionally I was just a mess. I missed Audrey and Ben too- not a good combo when you put it all together. Anyways, Ben came in the evening and sent me home. He's staying again tonight to be there with Judah and to feed him. I want to be there so badly but this is the second time this has flared up and I want to be feeling better when my Judah cub gets home. My man knows me so well, he told me "I know this is hard for you but I don't want you here first time in the morning either. Call me and we'll go from there" :) gosh I love that man.
Anyways- he's doing well. He's been off the oxygen for 12hours and seems to be tolerating it well. The plan is discharge tomorrow as long as things are okay. He's still having arrhythmia's but everything else is stable, his little heart is just healing and is working somethings out. If not, we know he's being taken care of by a mighty God and a fantastic team of doctors and nurses. We're not going to rush him and want him home when he's ready to come home.
I'm just so thankful that he's going to be home in a matter a day or days, compared to weeks. I just cried and cried thinking about the kiddos who have been there for weeks and months and how that must be for there families. Ben and I have been praying for the unit and the babies and kiddos that are there. It breaks our heart but we know that God is in control.
Thank you for your prayers and we'll keep the updates coming.
Friday, June 22, 2012
Monday, June 18, 2012
Very busy past 2 days!!
Our Judah is doing so awesome. He's been such a trooper. After his surgery, we came home and crashed. It was the hardest thing leaving him but I know from my experience as a NICU nurse, and from the doctors counsel that yes, the first 24hrs are super critical and you want to be there right next to him- but is it really helpful for him and you sitting by his bedside, not being able to touch him or anything. I know that letting him be and just recover is the best thing for him but it was so hard.
We got to see him and kiss him about 2 hours after he came out of surgery. He looked amazing, his color was great, he was warm all the way to his toes, and he wasn't swollen. I was so happy with the way he looked, as was his surgeon who had called at least 3 times and checked in on him 2-3times. His nurse through the past 3 nights has been great too. I couldn't be happier with the doctors and nurses our Judah has had.
So we got a good nights rest and were trying to get out the door yesterday to go see him and things just started going wrong. The drain in the bathroom was giving us fits, we were out of food, and when we finally got on the road to go see our baby- we got rear ended by a drunk driver while sitting at a red light at 1300 in the afternoon. It was a mess. I was a mess. I was really emotional and all I wanted to do was see my son. Thank God we were okay and didn't need medical attention. It was actually a really good thing we got hit- there was a young girl in front of us on a motorcycle and if the woman who hit us would have hit her- she would have killed her. AND the girl on the bike was the chief of police's daughter... thank you God. We got things taken care of and got to go to see our Judah cub. We got there and he looked fantastic. He was still a little sedated but after we were there awhile he opened his eyes for a long time. He started having a hard time, arching his back, grunting so they gave him morphine, and a glycerine chip to help him move things along- it worked wonders. He wasn't too sure about eating but has since gotten the hang of it. They mentioned placing an NG tube if he didn't pick up the amount but he just needed a little more time. He's now taking about 2oz and increasing with each feed- PRAISE GOD!!!
Judah's chest tube came out yesterday morning, all of the pacer wires, the line directly into him atrium, his UVC line, the IV in his right foot, all his drips and IV fluids were all stopped today. I've had a rough day today. Before we left for the hospital I was pumping and felt a lump on my breast, so I got a heat pad and made it a goal to pump more often today. Got to the hospital, pumped and noticed bright red streaks on both breast with a ton of pain.... why hello double mastitis. Thank God the midwife in the delivery unit saw me, wrote me a prescription and said it was time to go home and get in bed- not what I wanted to hear. Since all the lines came out today we should be able to hold him tomorrow!!!!! He was wide awake for a little bit for his Daddy. When we came home i called to check on him and his breathing was a little shallow and he was having sats of low 90%s on high flow o2 100% (everything else looked good) so they did a chest xray. It looked a little hazy so they gave him an extra dose of lasix and he's doing great. I'll call in a few hours to recheck on him. He ate great this past feed, and is comfortable. i'm resting and just dying to hold him.
Thank you for your prayers. Please continue to pray for our Judah, his feeds, his breathing, and a quick recovery with no complications. We love you and will continue to update. *again- this was not proof read- I'm tired and only sleeping 2hrs at a time- hang in there with me :)
We got to see him and kiss him about 2 hours after he came out of surgery. He looked amazing, his color was great, he was warm all the way to his toes, and he wasn't swollen. I was so happy with the way he looked, as was his surgeon who had called at least 3 times and checked in on him 2-3times. His nurse through the past 3 nights has been great too. I couldn't be happier with the doctors and nurses our Judah has had.
So we got a good nights rest and were trying to get out the door yesterday to go see him and things just started going wrong. The drain in the bathroom was giving us fits, we were out of food, and when we finally got on the road to go see our baby- we got rear ended by a drunk driver while sitting at a red light at 1300 in the afternoon. It was a mess. I was a mess. I was really emotional and all I wanted to do was see my son. Thank God we were okay and didn't need medical attention. It was actually a really good thing we got hit- there was a young girl in front of us on a motorcycle and if the woman who hit us would have hit her- she would have killed her. AND the girl on the bike was the chief of police's daughter... thank you God. We got things taken care of and got to go to see our Judah cub. We got there and he looked fantastic. He was still a little sedated but after we were there awhile he opened his eyes for a long time. He started having a hard time, arching his back, grunting so they gave him morphine, and a glycerine chip to help him move things along- it worked wonders. He wasn't too sure about eating but has since gotten the hang of it. They mentioned placing an NG tube if he didn't pick up the amount but he just needed a little more time. He's now taking about 2oz and increasing with each feed- PRAISE GOD!!!
Judah's chest tube came out yesterday morning, all of the pacer wires, the line directly into him atrium, his UVC line, the IV in his right foot, all his drips and IV fluids were all stopped today. I've had a rough day today. Before we left for the hospital I was pumping and felt a lump on my breast, so I got a heat pad and made it a goal to pump more often today. Got to the hospital, pumped and noticed bright red streaks on both breast with a ton of pain.... why hello double mastitis. Thank God the midwife in the delivery unit saw me, wrote me a prescription and said it was time to go home and get in bed- not what I wanted to hear. Since all the lines came out today we should be able to hold him tomorrow!!!!! He was wide awake for a little bit for his Daddy. When we came home i called to check on him and his breathing was a little shallow and he was having sats of low 90%s on high flow o2 100% (everything else looked good) so they did a chest xray. It looked a little hazy so they gave him an extra dose of lasix and he's doing great. I'll call in a few hours to recheck on him. He ate great this past feed, and is comfortable. i'm resting and just dying to hold him.
Thank you for your prayers. Please continue to pray for our Judah, his feeds, his breathing, and a quick recovery with no complications. We love you and will continue to update. *again- this was not proof read- I'm tired and only sleeping 2hrs at a time- hang in there with me :)
Saturday, June 16, 2012
God is so good!
Judah did awesome during surgery! He was out in about 4 hrs. Since he was sedated so long, he's having a rough time waking up. He's still on the vent but doing great. Labs, gases, and heart all look great. We got to see him a few minutes and he really looks fantastic. God is so good, I'm overwhelmed. Our little man came through surgery and while we're still in the critical time period we know he's being protected. Pray he comes off the vent soon, no infection/bleeding, and that he wakes up hungry! If everything goes as it should we could have our Judah home anywhere from 7-10 days!!! PRAY FOR A QUICK recovery!
Friday, June 15, 2012
Judah update
Our little man cub went to MRI this morning at 0800 after 2.5 hours of snuggle time with his Momma. His open heart surgery started about 1030 this morning and is doing well. We got to speak with the doctors a surgeons. We are so blessed to be here at CHOP and know without a doubt he is in the best place and is being taken care of so very well.
Ben stayed with Judah last night while I went home to get some sleep. I had a rough day yesterday and I'm so glad Ben told me I was going home to get some sleep :) It was so hard being away from him but it gave Daddy some snuggle time with his son (8hours Daddy held him) and I was able to love on the wild woman and get some great rest. I left this morning for the hospital at 0400. Go figure the time I get up outta bed at 0350 Audrey sleeps till almost 0800....THAT HAS NEVER HAPPENED!!!!! haha oh well, praising God Meem got some good rest.
Ben and I are just keeping busy and waiting for our little man to get out of surgery. God is so good and has out sweet Judah in the palm of his hand. He is so loved and blessed by the prayers of so many.
We found out Judah has an area on the arch of his aorta that is narrowed that the doctors are worried about. Right now they decided not to enlarge it- being that it would make this surgery much more riskier and longer. The team consulted and all agreed that waiting to see if any scar tissue blocks it or if it grows with him is the best and safest option for Judah.Ben and I agree and trust the decision of the team.
He's such a strong lil' fella and we are sooooo blessed to have him as our son. Our prayer is that through ALL OF THIS, the praise and honor goes to God. He has blessed us beyond imagine and we're thankful for the growth this has given us.
Thank you for you thoughts, prayers, and sweet words. They have meant so much to us during this time, they truly have. We will be updating often, thanks again! (hang in there with me, this is being typed fast and I'm not proof reading :)
Eisenharts.
Ben stayed with Judah last night while I went home to get some sleep. I had a rough day yesterday and I'm so glad Ben told me I was going home to get some sleep :) It was so hard being away from him but it gave Daddy some snuggle time with his son (8hours Daddy held him) and I was able to love on the wild woman and get some great rest. I left this morning for the hospital at 0400. Go figure the time I get up outta bed at 0350 Audrey sleeps till almost 0800....THAT HAS NEVER HAPPENED!!!!! haha oh well, praising God Meem got some good rest.
Ben and I are just keeping busy and waiting for our little man to get out of surgery. God is so good and has out sweet Judah in the palm of his hand. He is so loved and blessed by the prayers of so many.
We found out Judah has an area on the arch of his aorta that is narrowed that the doctors are worried about. Right now they decided not to enlarge it- being that it would make this surgery much more riskier and longer. The team consulted and all agreed that waiting to see if any scar tissue blocks it or if it grows with him is the best and safest option for Judah.Ben and I agree and trust the decision of the team.
He's such a strong lil' fella and we are sooooo blessed to have him as our son. Our prayer is that through ALL OF THIS, the praise and honor goes to God. He has blessed us beyond imagine and we're thankful for the growth this has given us.
Thank you for you thoughts, prayers, and sweet words. They have meant so much to us during this time, they truly have. We will be updating often, thanks again! (hang in there with me, this is being typed fast and I'm not proof reading :)
Eisenharts.
Judahs journey...
Judahs journey begins tomorrow with his open heart surgery sometime early morning. We're doing good, ben is amazing and has just been so supportive. I'm a postnatal mess of emotions and just want tomorrow over, my baby in my arms, and his big boo boo (like the wild woman says) to be healed. Thanks again for the prayers, just please keep them coming these next few days.
Wednesday, June 13, 2012
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